Appendix 2: Minimum diabetes dataset and aggregated dataset to be reported to LDTs

Ministry of Health and district health boards: Effectiveness of the "Get Checked" diabetes programme.

The items required to be recorded in the diabetes register are:

  • NHI (national health index number);
  • sex;
  • date of birth;
  • ethnic origin;
  • date of annual review;
  • type of diabetes;
  • year of diagnosis;
  • whether or not the patient is a smoker;
  • height;
  • weight;
  • date of last retinal examination or ophthalmologist review;
  • systolic blood pressure;
  • diastolic blood pressure;
  • HbA1c;
  • urine albumin:creatinine ratio (micro-albuminurea) (if clinically indicated);
  • dip-stick test for micro-albuminurea (if clinically indicated);
  • total cholesterol;
  • HDL-cholesterol;
  • triglyceride;
  • diabetes therapy (insulin, oral medication for glycaemic control, diet only);
  • other relevant therapies (ACE inhibitor, anti-hypertensive medication other than ACE inhibitor, and HMGCo-A reductase inhibitor or statin); and
  • other medication specifically for controlling hyperlipidaemia (not HMGCo-A reductase inhibitor).

The aggregated data to be reported to LDTs is:

  • number of people with type 1 diabetes;
  • number of people with type 2 diabetes;
  • number of people with retinal screening or ophthalmologist examination in the last two years;
  • number of people with HbA1c greater than 7%;
  • number of people with HbA1c greater than 8%;
  • number of current smokers;
  • number of people on ACE inhibitor;
  • number of people with total cholesterol reported;
  • number of people with total cholesterol greater than nine; and
  • number of people on statins.
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